Raising awareness to the Public and Professionals about an emerging disease
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Action Resouces
Most doctors in the UK are not aware that Morgellons Disease exists. Therefore, most of the general public are not aware either.
As of August 2008:
Extract: "the UK Government's plan for addressing this condition, is to investigate the symptoms of each person who suffers from this condition on an individual basis. The symptoms associated with this rare condition are wide ranging and non-specific and it is important that individuals are thoroughly assessed in the first instance by their GP, and any treatment tailored to their individual needs."
(Dr Ailsa Wight Head, Infectious Disease and Blood Policy Branch, on behalf of the Chief Medical Officer, Sir Liam Donaldson).
Our
reply to the Department of Health (3rd September 2008)
Letter
in full, received from Department of Health (22nd August 2008)
Initial
email to the Chief Medical Officer (11 August 2008)
In the meantime, everyday people are being affected by this disease, but are not able to access the help and support they so deperately need.
What can I do?
1) Tell people about Morgellons Disease and our UK Campaign at: www.morgellonsuk.org.uk
2) Print
and distribute leaflets - Morgellons Research Foundation leaflet - Side
1 54kb/Side
2 78kb
3) Write emails and letters: Contact addresses and Emails