Raising awareness to the Public and Professionals about an emerging disease
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Action Resouces
Most doctors in the UK are not aware that Morgellons Disease exists. Therefore, most of the general public is not aware either.
What can I do?
1) Tell people about Morgellons Disease and our UK Campaign at: www.morgellonsuk.org.uk
2) Print and distribute leaflets:
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Morgellons UK Information leaflet (NEW) | Side
1  80kb |
Side
2 126kb |
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Morgellons Research Foundation leaflet | Side
1 54kb |
Side
2 78kb |
3) Write emails and letters: Contact addresses and Emails
UK Government position as of August 2008:
Extract: "the UK Government's plan for addressing this condition, is to investigate the symptoms of each person who suffers from this condition on an individual basis. The symptoms associated with this rare condition are wide ranging and non-specific and it is important that individuals are thoroughly assessed in the first instance by their GP, and any treatment tailored to their individual needs."
(Dr Ailsa Wight Head, Infectious Disease and Blood Policy Branch, on behalf of the Chief Medical Officer, Sir Liam Donaldson).
- Our
reply to the Department of Health (3rd September 2008)
- Letter
in full, received from Department of Health (22nd August 2008)
- Initial
email to the Chief Medical Officer (11 August 2008)
In the meantime, everyday people are being affected by this disease, but are not able to access the help and support they so deperately need.
Media coverage in the UK
Mail on
Sunday, 5th February, 2012
'I
am not mad, Morgellons IS real': Thousands claim to suffer from the agonising
skin condition but doctors say it is psychological
http://www.dailymail.co.uk/health/article-2096439/Morgellons-IS-real-Thousands-claim-suffer-agonising-skin-condition-doctors-claim-psychological.html
The Irish
Examiner, Friday 12th August, 2011
My Mysterious Itch
http://www.irishexaminer.com/feelgood/archive/2011-08-12.pdf
The Telegraph,
Monday 11th July, 2011
Morgellons
Disease continues to defeat scientists
http://www.telegraph.co.uk/health/8626767/Morgellons-Disease-continues-to-defeat-scientists.html
The Guardian,
Saturday 7th May, 2011
Morgellons: A hidden epidemic or mass hysteria?
http://www.guardian.co.uk/lifeandstyle/2011/may/07/morgellons-mysterious-illness
The Independent,
Tuesday, 21 September 2010
Unusual illnesses: Curiouser and curiouser
http://www.independent.co.uk/life-style/health-and-families/features/unusual-illnesses-curiouser-and-curiouser-2084669.html
Guardian,
23rd April, 2010
Bob Dylan is 'a plagiarist', claims Joni Mitchell
http://www.guardian.co.uk/music/2010/apr/23/bob-dylan-joni-mitchell
The Times,
March 17, 2010
Why Too Poor for Posh School made me weep
http://www.timesonline.co.uk/tol/comment/columnists/sathnam_sanghera/article7064269.ece?openComment=true
The New
Scientist, 2nd September, 2009
13 more things: Morgellons disease
http://www.newscientist.com/article/mg20327246.400-13-more-things-morgellons-disease.html
London
Metro, 12 November 2007
Misery of Itch and Scratch
http://www.morgellons-uk.net/pdf/metro.pdf
Daily
Mail, 18 September 2007
Is this a disease or an episode of the X Files?
http://www.dailymail.co.uk/health/article-482408/Is-disease-episode-X-Files.html
The Times,
August 12, 2006
Morgellons attack!
http://www.timesonline.co.uk/tol/life_and_style/health/article1084223.ece
The Times,
19th May, 2006
All in the head?
http://www.timesonline.co.uk/tol/comment/article721795.ece
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Media
coverage logged by Morgellons Research Foundation, USA