Raising awareness to the Public and Professionals about an emerging disease
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Action Resouces
Most doctors in the UK are not aware that Morgellons Disease exists. Therefore, most of the general public are not aware either.
As of August 2008:
Extract: "the UK Government's plan for addressing this condition, is to investigate the symptoms of each person who suffers from this condition on an individual basis. The symptoms associated with this rare condition are wide ranging and non-specific and it is important that individuals are thoroughly assessed in the first instance by their GP, and any treatment tailored to their individual needs."
(Dr Ailsa Wight Head, Infectious Disease and Blood Policy Branch, on behalf of the Chief Medical Officer, Sir Liam Donaldson).
Our
reply to the Department of Health (3rd September 2008)
Letter
in full, received from Department of Health (22nd August 2008)
Initial
email to the Chief Medical Officer (11 August 2008)
In the meantime, everyday people are being affected by this disease, but are not able to access the help and support they so deperately need.
What can I do?
1) Tell people about Morgellons Disease and our UK Campaign at: www.morgellonsuk.org.uk
2) Print
and distribute leaflets - Morgellons Research Foundation leaflet - Side
1 54kb/Side
2 78kb
3) Write emails and letters: Contact addresses and Emails
Media coverage in the UK
Guardian,
23rd April, 2010
Bob
Dylan is 'a plagiarist', claims Joni Mitchell
http://www.guardian.co.uk/music/2010/apr/23/bob-dylan-joni-mitchell
The Times,
March 17, 2010
Why Too Poor for Posh School made me weep
http://www.timesonline.co.uk/tol/comment/columnists/sathnam_sanghera/article7064269.ece?openComment=true
The New
Scientist, 2nd September, 2009
13 more things: Morgellons disease
http://www.newscientist.com/article/mg20327246.400-13-more-things-morgellons-disease.html
London
Metro, 12 November 2007
Misery of Itch and Scratch
http://www.morgellons-uk.net/pdf/metro.pdf
Daily
Mail, 18 September 2007
Is this a disease or an episode of the X Files?
http://www.dailymail.co.uk/health/article-482408/Is-disease-episode-X-Files.html
The Times,
August 12, 2006
Morgellons attack!
http://www.timesonline.co.uk/tol/life_and_style/health/article1084223.ece
The Times,
19th May, 2006
All in the head?
http://www.timesonline.co.uk/tol/comment/article721795.ece
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Media
coverage logged by Morgellons Research Foundation, USA