Raising awareness to the Public and Professionals about an emerging disease
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Research
Cases of Morgellons Disease are being reported from around the world. Some sufferers report having had symptoms for decades - since the 1980's, maybe earlier.
Much of the research is centred in the USA.
In January 2008, the Centers for Disease Control & Prevention (CDC) announced that it was carrying out an epidemelogical study into Morgellons. The study was conducted by Kaiser Permanente, a large health care provider in Northern California, in partnership with the Armed Forces Institute of Pathology (AFIP). The study involved gathering information from over 100 sufferers and at least 50 of these have been examined and samples taken from them.
The study findings were expected to be released in 2009, now delayed. In the meantime, the CDC have written to all state health departments to make them aware of Morgellons, which is now listed on the US National Library of Medicine listing.
Morgellons UK would like to see UK Universities and scientific centres allocate resources to join in with current research in the States.
There are over 20 published journal articles concerning Morgellons Disease.
Research and theories could not be more varied, but are starting to converge in their observations.
Researchers & their research:
Centers for Disease Control & Prevention (CDC),
- Kaiser Permanente - assisting with CDC study
- Armed Forces Institute of Pathology (AFIP) - assisting with CDC study
- Dept
of Health & Human Services
- letter from CDC to all State Medical Associations (Dec 2008)
Morgellons Research Foundation (MRF) - Chairman, Dr William Harvey, Founder Mary Leitao
- Clongen Laboratories, Maryland - Dr Ahmed Kilani
- Jenny Haverty - Clinical Microbiologist
- Phase
1: Recovery of Morgellons-Related Particles from Water Samples (Aug
2008)
- Harvey,
Bransfield, Mercer, Wright, Ricchi and Leitao, (2009) Morgellons
disease, illuminating an undefined illness: a case series, Journal
of Medical case reports. 3:8243
- Savely & Stricker (2007) Morgellons Disease: The mystery unfolds, Expert review of Dermatology. Vol. 2, No. 5, Pages 585-591
- Savely
& Stricker
(2010) Morgellons disease: Analysis of a population with clinically
confirmed microscopic subcutaneous fibers of unknown etiology, Clinical,
Cosmetic and Investigational Dermatology, Volume 2010:3
- Leitao,
Savely, Stricker
(2006) The mystery of Morgellons: Infection or Dellusion? (PDF
437kb) - American Journal of Clinical Dermatology. 7: (1), 1-5
Oklahoma State University & Charles E. Holman Foundation - Dr Randy Wymore
- Robert F Smith - BS Genetics, MS (Chemistry)
Stony Brook University, New York
- Dr. Vitaly Citovsky & Mark Darrah - SEM Results & Images
- Mark Darrah - Further SEM images from sufferers
- Dr Citovsky - video presentation of SEM images
Dr. Hildegarde Staninger - Toxicologist
Dr Rahim Karjoo, M.D - American Medical Diagnostic Laboratories, Inc
Dr Amin - Parasitologist
Tulsa Police Crime Lab: Ron Pogue & Mark Boese
Institute of Science in Society - Dr. Mae-Wan Ho & Prof. Joe Cummins
Chao
D, Cave D (2009) Small Bowel Capsule Findings Suggest
that Morgellon's Disease has an Organic Basis and is Not Psychosomatic
in Origin, University of Massachusetts Medical Center.
http://download.abstractcentral.com/ACG/proofs/P984.html
Independent non-clinical/non-professional research:
Morgellons UK- Close associations: Micro-myiasis & Morgellons disease